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Primary data sources

The Irish Study of Sexual Health and Relationships

9.10.2006 This study was commissioned by the Department of Health and Children and the Crisis Pregnancy Agency (CPA) in response to a recommendation of the National AIDS Strategy Committee. The findings of this report will be considered by various organis ...

Northern Ireland Cancer Waiting Times: October, November and December 2013

Department of Health, Social Services and Public Safety (DHSSPSNI) Cancer services waiting times The release gives details of the waiting times for patients accessing cancer services at hospitals in Northern Ireland during the months of October, November ...

National Cancer Drug Management Programme

National Cancer Control Programme (NCCP), Health Service Executive Demographic data, drug use data, financial data The National Cancer Drug Management Programme coordinates and manages the use of cancer drugs nationally. A key component of the programme i ...

HSE Performance Reports – Disability Services

HSE- Planning, Performance and Business Information Unit Disability, physical and sensory disability, intellectual disability, day care, respite, residential care, congregated settings, personal assistant, home support services, disability act The Plannin ...

HSE Performance Reports – Acute Hospitals including Clinical Programmes, National Ambulance Service and National Cancer Control Programme

HSE- Planning, Performance and Business Information Unit Acute, activity, inpatient discharges, day cases, emergency presentations, inpatient admissions, bed utilisation, births, beds The Planning, Performance and Business Information Unit collates the HS ...

Secondary Prevention of Heart Disease in General Practice (SPHERE)

Health Research Board (HRB) Outcomes for patients with coronary heart disease in primary care The aim of the study is to design, implement and test an intervention to improve the process of care and objective clinical outcomes for patients with establishe ...

CoHeart

Research Datasets held by the Discipline of General Practice, NUI Galway Secondary preventive care, Ischaemic heart disease The aim of the study was to assess the effectiveness of secondary preventive care of ischaemic heart disease amongst a cohort of pa ...

Northern Ireland Newborn Screening Programme Database

Public Health Agency (PHA) Database on newborn screening In the first week after birth, all babies in Northern Ireland are offered screening ('heel prick test') for a range of inherited conditions including phenylketonuria (PKU), congenital hypo ...

Northern Ireland Newborn Hearing Screening Programme Database

Public Health Agency (PHA) Database on newborn hearing screening The current newborn hearing screening programme in Northern Ireland, which has been in place since October 2005, is offered to all newborn infants. The aim of the screening programme is to r ...

National Pulmonary Hypertension Unit Database

Centre for Lung Health Pulmonary arterial hypertension register Pulmonary arterial hypertension includes a group of diseases incorporating Idiopathic Pulmonary Arterial Hypertension (IPAH) and PAH related to various underlying medical conditions.  With th ...

UK Renal Registry (UKRR)

UK Renal Registry (UKRR) Renal disease registry The UK Renal Registry (UKRR) is a resource for the development of patient care in renal disease. It was established by the Renal Association with support from the Department of Health, the British Associatio ...

UK Epilepsy and Pregnancy Register

The UK Epilepsy and Pregnancy Register Registry for pregnant women with epilepsy The UK Epilepsy and Pregnancy register was established in 1996 for pregnant women in the UK. The major objective of the register is to obtain and publish information on the f ...

UK Cystic Fibrosis Registry

Cystic Fibrosis Trust Cystic Fibrosis Registry The UK Cystic Fibrosis Registry tracks the health of people with CF throughout the UK; its primary purpose is to help drive up the standard of clinical care. In 2007 the Cystic Fibrosis Trust implemented the ...

The National Haemophilia Database

United Kingdom Haemophilia Centre Doctors' Organisation (UKHCDO) Haemophilia Database The National Haemophilia Database (NHD) is a register of patients with bleeding disorders living in the UK, originally established in Oxford in 1968. This database ...

Severe Chronic Neutropenia International Registry (SCNIR)

Severe Chronic Neutropenia International Registry Neutropenia register Neutropenia is a blood disorder, in which the number of neutrophils (white blood cells) in the blood is too low. The Severe Chronic Neutropenia International Registry (SCNIR) was estab ...

CRANE Database

Cleft Development Board Cleft lip and palate database The CRANE database is a record of information about children born with cleft lip and palate in England, Wales and Northern Ireland. The CRANE Database can be considered a continuation of the Craniofaci ...

National Centre for Medical Genetics (NCMG)

National Centre for Medical Genetics (NCMG) Genetics The National Centre for Medical Genetics seeks to provide a comprehensive service for all patients and families in the Republic of Ireland affected by or at risk of a genetic disorder. The Centre, under ...

National Newborn Bloodspot Screening Register

Health Service Executive (HSE) Newborn Bloodspot Screening (NBS) Register The National Newborn Bloodspot Screening Programme (NNBSP) screens all newborn babies for six conditions soon after birth, to ensure that any baby with one of these rare conditions ...

Irish Heart & Lung Transplant Programme Database

National Centre for Cardiothoracic Surgery, Mater Misericordiae University Hospital, Dublin Heart, Lung, Transplant, Database Since April 1999 the Department of Health have funded a heart/lung and lung transplant programme based at the Mater Hospital in D ...

Health Service Executive Newborn Hearing Screening Programme

Health Service Executive (HSE) Screening, Hearing, Newborn baby In the South and South East of Ireland (Cork University Maternity Hospital, Wexford General and Waterford Regional Hospitals) parents of all babies born are offered a hearing screen for their ...

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